Expert Pediatric Epilepsy Care Transformed Steven’s Life
February 02, 2026
Born at just 27 weeks due to placenta abruption, Steven spent six critical months in the Joe DiMaggio Children's Hospital NICU. Diagnosed with grade three and four brain bleeds as a newborn, Steven’s medical journey began with uncertainty. Early on, he developed hydrocephalus and epilepsy, requiring careful, ongoing management by Joe DiMaggio Children's Hospital's pediatric neuroscience care teams, including Dean Hertzler, MD, pediatric neurosurgeon; and pediatric neurologists Stefanie Berry, MD, and Syndi Seinfeld, DO.
Empowering Parents and Building Trust
Steven’s mother recalls a pivotal moment when he was given a 0% chance of survival in the NICU. The pediatric neurology team listened to her concerns and respected her choice to continue care. This supportive, patient-centered approach empowered the family to make informed decisions and built unwavering trust in their providers.They were suggesting end-of-life care, but I disagreed. They listened to me and answered all our questions and concerns in a way that you can make the best judgment for your own family and your own children.
Comprehensive Pediatric Neurology and Epilepsy Care
Steven’s story is a testament to the hospital’s outstanding pediatric epilepsy and neurological care. From annual VP (ventriculoperitoneal) shunt checkups to continuous medication management and ADHD support, the pediatric neurology specialists worked closely with Steven and his family. The family praises their transparent communication and swift response during seizures or emergencies, ensuring Steven never missed a dose and always received timely care.
Support Beyond Medicine
For Steven’s family, Joe DiMaggio Children's Hospital became more than just a hospital, it became a second home. All three children, including Steven’s older sister and younger brother, experienced the warmth and familiarity of the Child Life Program, play zones, and compassionate staff. The hospital’s therapists and nurses saw Steven’s potential, always encouraging progress beyond his medical history.
Today, Steven thrives thanks to the collaborative efforts of disciplines like neurology, pulmonology, occupational and speech therapy, and dedicated nurses. The hospital environment, from the friendly valets to the play spaces and therapy teams, has contributed to Steven’s positive outlook. He even requests to go to the hospital whenever he senses a seizure coming, knowing he’ll be cared for with compassion and expertise.
Steven’s neurological journey is a beacon of hope and resilience. His story illustrates the hospital’s commitment to exceptional pediatric neurology, NICU, and holistic patient care—showing other families facing similar challenges that healing, trust, and compassion can truly make a difference.
Steven is defying all the odds. He was given a zero chance of survival and suggested end-of-life care. But today, he is truly a walking, talking, and thriving miracle.
