When Emily went in for her 15-week prenatal screening, she expected reassurance. Instead, she received life-changing news: her baby, Casey, had meningocele, a severe form of spina bifida, along with hydrocephalus. In that moment, fear and uncertainty took over.

What followed was a journey defined by compassion, expertise, and hope, guided by Laurence Davidson, MD, pediatric neurosurgeon, and Matthew Hibbs, MD, pediatric palliative care specialist at Joe DiMaggio Children's Hospital.

Diagnosed Before Birth. Supported Every Step.

Because Casey’s condition was identified early, Emily was connected to a coordinated care team before delivery. That early diagnosis made a difference and allowed physicians to plan and surround the family with medical and emotional support, right from the start.

One of the first specialists to meet the family was Dr. Hibbs. His role wasn’t about end-of-life care; it was about quality of life. Pediatric palliative care focuses on comfort, communication, and family-centered decision-making, especially when a diagnosis is complex. Dr. Hibbs was at Emily’s bedside before she delivered, discussing what her wishes were and every possible outcome. For Emily, that support made the road ahead feel manageable.

A Life-Changing Surgery at Just One Day Old

Casey was born with a clear plan in place. At just one day old, he underwent a delicate neurosurgical procedure performed by Dr. Davidson, who has extensive experience treating spina bifida and hydrocephalus in newborns.

The surgery addressed the meningocele and helped manage fluid buildup on Casey’s brain, which were critical steps to protect his neurological development.

“Handing your newborn over for brain and spine surgery is terrifying,” Emily says. “But Dr. Davidson explained everything, answered every question, and treated Casey like his own.”

The operation was a success and a powerful example of what specialized pediatric neurosurgery can do when timing and expertise matter most.

Today, Casey’s journey continues one milestone at a time. While his path isn’t without challenges, Emily knows her son is surrounded by a team that understands his needs and believes in his potential.

“I’m grateful we chose Joe DiMaggio Children’s Hospital,” Emily says. “They didn’t just treat Casey’s condition, they cared for our whole family.”